
My mother, Glenna Moore, was recently diagnosed with Amyotrophic Lateral Sclerosis, more commonly known as ALS or Lou Gehrig’s Disease. This diagnosis didn’t come as a surprise to the family as her “creeping paralysis” has become much more pronounced in the last few months.
ALS is a neurological disease where motor neurons from the brain stop reaching one’s muscles. When muscles no longer receive neurons, muscles cease to move. And when muscles stop moving, paralysis sets in. There is no cure for ALS and patients that suffer from this disease live a life of work-arounds.
At first, patients use a cane to help steady themselves when walking. And when walking becomes too challenging, patients start using walkers, wheelchairs, and scooters as their work-around to get around. Patients also lose the ability to move their arms and hands and thus need to find new ways to write, eat, dress, etc. One’s speech also becomes affected and eventually, ALS patients lose their ability to speak.
But patients do not lose the ability of their mind, nor the sparkle in their eyes. Dementia does not set in with ALS patients and that is what makes this disease so devastating. Sufferers suffer from the inability to move their voluntary muscles but they do not lose the ability to mentally comprehend what is happening to their body. Eventually, ALS patients lose the ability of their involuntary muscles, namely the ability to breathe, and subsequently patients lose their life.
As I mentioned, the family wasn’t surprised to learn of the ALS diagnosis and I had mentally and spiritually prepared myself for that diagnosis months ago.
And it was months ago when I began a special project to capture some of the stories my mom knows. Glenna Moore is our family historian and resident storyteller. She knows so much about intimate relatives and distant relatives. Unfortunately, I’ve never paid much attention to her stories through the years. I realize now … that’s my loss.
So to make up for my past mistakes of not paying enough attention to her stories, I sat down with my mother in August and recorded her telling stories while she shared family photos with me. I plan to turn her stories and photos into mini-documentaries. The first mini-documentary I’ve put together shares the story of the wedding between my parents, Al and Glenna Moore.
Glenna Moore -- The Wedding Story
click the 'play button' below to view
Direct link to the video on Google